SelfDecode

@aleks_muse Hi Aleksandra - 1) we curate published information that is available on both public and paid databases, and then our team of experts (with graduate degrees in life sciences) manually edit and curate this information to ensure correctness and accessibility. In the near future, we are looking at using more advanced data analysis tools including machine learning and data mining. 2) Because features are being released on a regular basis. In addition, new studies are being published every day (which we don't have control of, but we do update our database regularly) so what you get today could be different from what you get tomorrow.

@natchamaithai thank you for the answer!

@_jacksmith Yep, actionable outputs which are feedback optimized FTW

@datarade what makes you say that?

@datarade you are right, and we are aware of that. Just that the SNPs are the most accessible information right now. This is why we don't stick to a few SNPs with most studies on them, but we rather analyze all the data instead. We do tell people that SNPs isn't everything because there's a lot more to genetic expression and phenotypes, but having this data and access to the analysis is empowering. This is why we have pathway tools to look at all the genes together in context with the symptoms. Maybe someone could criticize 23andme for not releasing the real raw data that would make CNVs available... lol those could actually be a lot more informative than the SNPs. If you are familiar with this sort of data, it's possible to extract CNV data from the signals from this chip.

@datarade came into this product just to CTRL+F and find your comment

@lyondhur we curate published data from public (e.g. PubMed) and paid databases, so to be precise, we broker data, put them together in accessible formats, and have a team of experts curating them. It wouldn't be legal to make guaranteed health claims (neither could any health practitioner or other piece of software). This is a tool to help people take a look at their genetics in context and provide a few actionable things to try. In the end, the only way to know if something will work for them is to try it (with some safety precautions in mind, of course). This is the tenets of biohacking and SelfHacked by definition.

@natchamaithai thanks for the prompt response Nattha. I wished I were able to see more drilling into those questions; I do appreciate it though. As you yourself have voiced, SelfDecode would be a recommendation platform (as is, that's not very clear). It looks as though you're providing a genetic improvement service of advice, instead of what I believe your intention to be: decoding genetic data and specialised help translating and framing it, so that people can do whatever they want with it. You might want to look at they way the website presents the opportunity to the public. Near all of us in here are fairly capable of identifying what biohacking means, the generalities of your business operation and part in manipulating public/private datasets, as well as the academic weight terms like specialists and PhDs play on reinforcing to the general public that "SelfDecode may improve someone's health" (that's sort of the tone here). The general public needs way more simplified formalisation around this.

@natchamaithai As mentioned by others, SelfDecode also encourages people to share their symptoms - not only their genetic descriptors from other sources - in some sort of an internal forum. Again, with a TOS of only three small paragraphs where phrasing such as "unintentionally leak/share your info with a third party" its ever a bit hard to understand your entire direction. There's a real privacy problem here that needs answering. I can't see any of it. No doubt the science is mustard. However, It seems to me you guys are going to the public with quite a few other knots to tie out before that. "Genetic Digital Health Coach" is sooooo ambiguous... I hope all this may be taken with an opened mind. Good luck with the project.

@lyondhur It is a recommendation platform and there are many different ways to call it. Maybe we can improve on the communication part? Feel free to throw some ideas at me. I think this is helpful. Sometimes we nerds get caught in our own heads and the nerdier details so we forget the simple stuff like this.