COVID-19 Global Rheumatology Alliance: Physician registry to enter data about pts with COVID-10

Registry for healthcare providers to enter data about their rheumatology patients with COVID-19. Soon adding EU and patient entered registries. Article today in Wired: https://www.wired.com/story/doctors-are-pooling-data-to-help-understand-covid-19/

This is an excellent resource. Hopeful that this will provide powerful insights into rheumatic diseases, immuno-suppressant meds and COVID-19. Really pleased to see rheumatologists and patient organizations coming together to make this happen.

Currently, there is very little data on the outcomes among patients with rheumatic diseases and patients treated with rheumatology medications who contract COVID-19. This secure, de-identified, international registry will curate and disseminate results from the submitted cases to address these knowledge gaps. Top goals of the registry include: 1. Understanding the outcomes of patients with rheumatic conditions who develop COVID-19 and the influence of their comorbidities and medications on their outcomes. 2. Understanding the influence of rheumatic medications, such as hydroxychloroquine, on the outcomes of patients who develop COVID-19. 3. Rapidly performing systematic reviews of the currently available literature regarding rheumatic conditions and medications in patients who develop COVID-19 and updating them frequently while the pandemic is still active globally. 4. Exploring the rheumatology patient experience during the COVID-19 pandemic.